Our mission at the Ehlers Danlos Syndrome Network C.A.R.E.S. Foundation in Muskego, WI, is to find treatment and a cure for this potentially deadly condition.
Ehlers Danlos Syndrome is a genetic connective tissue disorder. It affects all the connective tissue throughout our body. Muscles, ligaments, tendons, arteries and skin are like tissue paper.
There are six types of EDS. The vascular type is the most serious type of EDS. If you have the vascular EDS type, your life expectancy is shortened. People with the vascular EDS type will only live to be 48-years-old. The internal organs or arteries will rupture at any given time. There's no treatment or cure for EDS.
We Have Already Coordinated Several Research Projects, Including:
- Driscoll Theory
- Head Circumference Growth in EDS Children
- The Efficacy of New Version of Oxycodone on Adolescents
- The Role of Smooth Cells in Vascular EDS