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Copyright 2010, All Rights Reserved, EDS Network C.A.R.E.S., Inc.

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            Mission Statement

EDS Network Cares is a non-profit organization established

and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.

Our mission is to help improve the quality of life for people who have Ehlers-Danlos Syndrome, through research, education and support.

We believe..........

• By supporting research, effective management techniques will be developed and ultimately, a cure will be found.
  

• Through support, we meet the needs of those who deserve personal attention in crisis and in grief
  

• Through education and advocacy, we promote awareness, understanding and ensure access to treatment
  

web site by ~ Lynn Sanders

This page was last updated: January 13, 2010

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