EDS Network CARES Blog

Head Circumference Growth in Children With Ehlers-Danlos Syndrome Who Develop Dysutonomia Later in Life

Http://clinicaltrials.gov/ct2/show/NCT01367977

Please help with these EDS clinical trials because the more we know, the more we learn!

Thanl you, we appreciate your support...

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We would like to Welcome, Tamera Bowman to our EDS Network CARES Board of Directors. Please check out Tamera's BIO on the Board of Directors webpage. We all look forward to working with you.

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Congratulations, EDS Today for placing 9th place out of thousands of other charities. EDS Today won $20,000 from the Facebook Chase contest. Thank you, Cathy Bowen & Chrisitne Phillips for all you did too win 9th place. Thanks also goes to all the volunteers that help get votes and for all the people who voted for EDS Today. Great Job!!

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Welcome to our first EDSNC blog! We are excited to help our EDS families understand what EDS Network CARES foundation is all about. We will also keep you updated on the different events that are going on throughout the month. We would also like to make a volunteer list that we can use when we need volunteers to help us out. This is our foundation and if we all work togther we can and will get more things down. I can't thank everyone enough for always wanting to help.  Thank you so much! I think the blogging will be a helpful tool for the foundation and for the people that want to be updated on what the foundation is doing...! I hope you will enjoy the blog and if you ever have any suggestions, please feel free to email us or give the EDSNC office a call.   Email: EDSNetwork@wi.rr.com

I look forward to our next blog...please feel free to call the EDS Network CARES office anytime, Monday - Friday from 8:00am - 6:00pm (CST)  Phone (262) 514-2851

If you need something after hours, you can call but please only call if you just can't wait until Monday. Emergency situations please call 911.

 Thank you all for your continued support. We truly appreciate it!

 Lynn M Sanders Founder/President

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