EDS type IV Pregnancy Study
The researchers at the University of Washington are interested in learning more about EDS type IV pregnancies. Complications including uterine and arterial rupture, hemorrhage, and death have been reported during and after pregnancy in women with EDS type IV. At this time, there are no recommendations for pregnancy management, counseling, and the route of delivery. We hope to develop these recommendations through our work.
If not yourself, is there someone in your family who has EDS type IV, has been pregnant, and might be willing to participate? If so, please inform them of the study. If your relative is deceased, we would still be interested in reviewing medical records about their pregnancies or medical history.
If you wish to consider enrollment in our study, please contact us:
Melanie Pepin, MS, CGC
Suzanne Peterson, MD
Maternal Fetal Medicine Fellow
PETER H. BYERS, MD, PROFESSOR, PATHOLOGY & MEDICINE (MEDICAL GENETICS)
SUZANNE E. PETERSON, MD, FELLOW, MATERNAL FETAL MEDICINE
ULRIKE SCHWARZE, MD, ASSISTANT PROFESSOR, PATHOLOGY
MELANIE PEPIN, MS, CGC, GENETIC COUNSELOR, PATHOLOGY
UNIVERSITY OF WASHINGTON
DEPARTMENT OF PATHOLOGY
SEATTLE, WASHINGTON 98195-7470
Ehlers-Danlos Syndrome Network CARES Inc., 2010/Website Permission By Melanie Pepins