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Copyright 2008, All Rights Reserved, EDS Network C.A.R.E.S., Inc.

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The 10th Annual 2008 Advocacy Summit

This little voice was heard, loud and clear

at this years 2008 Arthritis Foundation

Advocacy and Kids Summit.  Caroline is our

youngest Advocate to tell her story about

how she lives with Ehlers-Danlos Syndrome.

Caroline did an outstanding job on behalf of

all our EDS Families and other types of

Arthritis.

My name is Caroline. I am almost seven

years old. I went to Washington DC and I

had lots of fun meetings new friends. I got to meet Senator Herb Kohl and Representative Jim Sensenbrenner. They listened to my story.

I have Ehlers-Danlos Syndrome which means that I will have arthritis some day. Arthritis affects my life because I cannot do the same things as my friends. I can’t play on the monkey bars because my arms could come out of their sockets. I have to wear shin guards to school so I don’t get cuts or bruises on my legs. (My skin can tear and get bruises very easily) I like to wear dresses but shin guards don’t match so well. My joints hurt more than I think they should. Everyone in Washington DC was really nice and we asked them to pass our bill so a cure for arthritis can be found. I hope I can go back next year!

PS – I also got to meet an astronaut!

web site by ~ wendy simon