EDS Network C.A.R.E.S. Inc.
PO Box 66
Muskego, WI 53150

Phone: (262) 514-2851
Email: edslynncares@gmail.com

EIN# 20-2951780


Ehlers Danlos Syndrome Network
C.A.R.E.S. Foundaton

Subtitle

Help Us Defeat Ehlers Danlos Syndrome

Ehlers Danlos Syndrome Network C.A.R.E.S. Foundation is a 501(c)(3) nonprofit located in Muskego, WI. Our foundation educates the public and health care community about Ehlers Danlos Syndrome and the need for more research and funding. We also support families and raise overall awareness surrounding the deadly disease. Click here to edit text


What is Ehlers Danlos Syndrome?

The Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin, loose joints and tissue fragility are often a result of abnormal genes that produce abnormal proteins that confer an inherited frailty of collagen (the normal protein "glue" of our tissues).


In 2001, researchers discovered a new form of Ehlers-Danlos Syndrome that is caused by an inherited abnormality in a protein other than collagen that also normally plays a role in binding together the cells of our tissues (including the skin, tendons, muscle and blood vessels). Abnormalities in this protein, called tenascin, also lead to a form of Ehlers-Danlos Syndrome. Researchers suspect that tenascin could play a role in regulating the normal distribution of collagen in the connective tissues of the body.


The Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin, loose joints and tissue fragility are often a result of abnormal genes that produce abnormal proteins that confer an inherited frailty of collagen (the normal protein "glue" of our tissues).




Click on the Donate Button to make a donation to Ehlers Danlos Syndrome Network CARES Foundation to our EDS Research Fund. Thank you for your support!